山西4岁男孩肚大如篮球家人为治病陷入绝境

（共10张）2015/7/21 10:54:06

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<p>今年4岁的男孩牛少龙不幸患上一种罕见病——戈谢氏病，肝脾日益肿大。虽然只有84厘米的个头，但龙龙的腰围却超过60厘米，圆鼓鼓的肚子如同一个篮球。每走两步，他就抚摸着肚皮直喘粗气。图为龙龙坐在家中的床上。新华社记者 燕雁 摄
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<p>龙龙的家在山西省左权县连北村，父母都是农民。龙龙的父亲牛晶晶说，为了给孩子治病，家里想尽一切办法，辗转各地求医问药。最终，在北京301医院才确诊，孩子罹患的是戈谢氏病。
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<p>据了解，戈谢氏病患者身体内缺失一种叫葡萄糖脑苷脂酶的抗体基因，导致肝脾肿大，血小板减少，会引发各种并发症，严重者会肝脾破裂危及生命。
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<p>龙龙趴在床上睡着了。因为肚子太大，孩子3年来一直要用这样的姿势睡觉。
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<p>龙龙的母亲张蓉为他量腹围，经过治疗后，龙龙的腹围有所缩减。父亲在隔壁房间整理孩子病历、治疗费用票据等资料。目前，戈谢氏病的治疗方法是注射一种名为“伊米苷酶”的药品，每一小瓶的售价高达两万多元。为了给孩子治病，牛晶晶夫妇四处奔走筹钱，变卖了家中值钱的物品，几间房子也已经抵押出去。
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<p>龙龙的父亲牛晶晶在展示孩子的治疗费用票据。
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<p>龙龙的父亲牛晶晶在展示给孩子治疗用的药品，这一小瓶药的价格高达二万三千余元。
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<p>牛晶晶夫妇在本子上详细记录着每一位好心人的捐款。
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<p>一些社会上的好心人知道孩子的情况后也纷纷捐款捐物。在大家的帮助下，龙龙已在北京301医院注射了三次“伊米苷酶”，病情有所好转。但面对后续的巨额治疗费用，这个太行山中的贫困家庭已经难以承担，陷入绝境。
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<p>这条路艰辛酸涩，但是只要有大家的陪伴，他们就能一直一直的走下去，直到抓住路尽头的希望。微信扫描二维码，为龙龙募捐。
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